Sickle Cell Disease in Nigeria: Why We Must Focus on Advocacy
The authors—Adeniyi Adesola, David Akoki, Joshua Lawal, Abigail Oyedokun, Anuoluwapo Babawale, and Oluwatomisin Agboola—are part of a Mentored Child Health Research Project led by the Duke Center for Policy Impact in Global Health and the University of Ibadan Medical Students' Association. Background: the scope of the disease Imagine a world where your own blood turns against you. That is the reality for millions of people living with sickle cell disease (SCD), a genetic condition that turns red blood cells into rigid and fragile, crescent-shaped obstacles. These cells can clog blood vessels, causing severe pain and life-threatening complications. Globally, Nigeria bears the highest burden—about 2% to 3% of the population has the disease—with about 150,000 newborns affected yearly and 50 million people carrying the sickle cell trait.1 Nearly half of affected…